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Make a donation and help fund research for a cure. Learn about debra of america's team working to raise eb awareness, and provide eb support to patients and families affected by epidermolysis bullosa (eb). Learn about epidermolysis bullosa (eb), a rare genetic disorder, its symptoms, treatments, and personal stories from the eb community at debra of america.
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Get to know the dedicated team behind debra of america, working tirelessly to support individuals and families affected by epidermolysis bullosa (eb). Debra of america is part of debra international, a worldwide network of national groups working on behalf of all people living with epidermolysis bullosa (eb). For more information or if you have any questions, feel free to contact us at
When there seems to be no way out, there's debra of america, a lifeline for thousands of families living with “the worst disease you’ve never heard of,” epidermolysis bullosa (eb).
Explore our mentorship programs, eb nurse educator program, new family advocate program, debra care conference & additional support services. Saturday, october 4, 2025 where Dell children's medical center 4900 mueller blvd austin, tx 78723 in partnership with university of texas at austin Please contact debra of america's national office with further questions or concerns
At present, there is no specific treatment for eb Current therapy is directed toward the prevention of skin.
